Phyllis Tarlow Fine Art - Hudson From Bear Mt
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Posts Tagged ‘wheelchair’

Retirement = Traveling = RVing – Could it Be A Possibility??

Okay so if you’ve been following along with me and this new journey, #Living_This_Paralyzed_Life, then you will remember several months back we were basically forced to cancel our trip to #Sedona AZ because, well basically, I panicked. I panicked because I have not yet traveled anywhere in any vehicle except our car and frankly, we don’t know how to do any other form of transportation. I know I need an #Aisle_Wheelchair but how does one go about getting one??? The airline we had our flights booked with publishes an “accessibility desk” phone number which I assumed would be able to help answer a few questions we had but sadly, after calling for 3 days, no one ever answered the phone, so yes, I panicked and we cancelled our entire trip. πŸ™

Which now brings us to, once again, trying to figure out how, how can we travel more easily and less stressful for both of us. My honey will be retiring and we, like many other retirees, would love to travel, but how? How always seems to be such a daunting thought now. πŸ™ We know flying doesn’t work but perhaps an #RV 🤔

After discussing the pros and cons of the various types of RVs, we decided a small tow behind might work best for us. So together we set out to visit Camping World, our local RV dealer. We went with intentions on looking at a #Coleman #Travel_Trailer. While we were there, the staff suggested we look at a #Toyhauler because it might be easier to push me in as the entire back wall opens down to a ramp. While that was really interesting, we feel that it might be too steep for my honey to push me in the #wheelchair.

Which brings us back to a travel trailer. Now, with a travel trailer we need to decide on how to get me in, I would like to go along 😂 Adding a lift of course adds to the overall cost. As of now, the Coleman Lantern by Dutchmen seems to be what would fit our needs bearing in mind additional costs and time for additional modifications. Personally, I really like the 2019 Coleman Coleman Light 2515RL, this model also has the jack-n-jill bathroom which is beneficial if we had guests as my honey needs to assist me and having this would help me maintain some small level of dignity.

We haven’t explored the additional cost of adding a lift but the additional conversion cost to modify the new Dodge Grand Caravan we purchased last month was just over $20K! 😲

For now we will continue to explore options and cost but would welcome any suggestions 😉

As always, I wish you days filled with wonder – take a minute to wonder what it is that made you smile today!

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Unable To Attend…Forced To Remember From A Distance

Here I sit yet again feeling sad and angry because once again I’m forced to be left out of an upcoming event I should be attending. Continue Reading Here

My/Our 4 Day Weekend…YAY turned to NAY

So last week Wednesday was our Friday! Yay, we had a 4 day weekend ahead!  I was excited, excited to spend 4 days with my honey! And then it happened, as it has so many times over the last 3 years, I was reminded of how  useless I really am because of this dX#m #wheelchair πŸ™ Continue Reading Here

I Wish I Could Help. . .

UGH, I hate not being able to help my friends and family! My parents are aging and I’m supposed to be able to be there for them but can’t because of this damn #wheelchair!

Continue Reading Here

Inclusion. . .It’s A Choice

In my life “before” (aka before life in a #wheelchair) I/we would get excited to be invited to an event/activity, now all I feel is anxiety and stress. Continue Reading Here

Lost. . .

Here I am close to 3 years later and I’m still feeling so lost, lonely, angry, sad, depressed, just so very very lost. Continue Reading Here

Random Thoughts. . .

I’ve found the funny thing about “random” thoughts is they aren’t so “random” after all… after doing a Google image search on these “random” thoughts/feelings I discovered others must have them too because there they were, staring right back at me, sad really, that these “random” thoughts aren’t so “random.”

Who Is That Woman In The Mirror

I am not the same person I used to be. I look in the mirror only to see a stranger looking back at me, at the me that used to be.

I don’t know how to enjoy life anymore, I can’t do the things that I used to bring joy to me, I can’t plant in my garden, I can’t meet “friends” for girls night, I can’t go shopping for gifts for anyone (tell me, how do you order an Easter basket fully put together online?), etc., etc., etc. Nothing matters. Continue Reading Here

HELLO. . . I Can Speak For Myself

Lately I’ve been finding myself getting more and more frustrated 😠 when I get treated different when my honey and I are out.” I’m finding more and more people talk about me as if I wasn’t there when I’m right there!

Last week we went to the dry cleaners so I could have a few pieces altered and the seamstress looked directly at my honey and asked “can she try this on”? EXCUSE ME. . . do you not see me?????

Does she need this, can she do that, does she what to do this, at the risk of being rude I feel I need to start responding with “HELLO, I’M SITTING RIGHT HERE AND CAN SPEAK FOR MYSELF!”

So what is it that makes people feel I’m not capable of speaking for myself, is it the wheelchair, is it because I’m a person of short stature or is it a combination of the fact that I am a person of short stature who happens to be in a wheelchair? I struggle to answer that because I simply just don’t know.

I had a very successful career for 30 working at the headquarters of a national non-profit organization. Ending my career I was a Director responsible for generating millions of dollars annually which required a great deal of contract negotiating to come to a mutually beneficial agreement. So, if I somehow managed to think for myself and speak to others for 55 years, why now all of a sudden do people think it’s okay to speak as if I’m not “sitting” right in front of them!

As always, I wish you days filled with wonder – take a minute to wonder what it is that made you smile today!

Please feel free to β€œSHARE” this post with your family/friends! And don’t forget to leave your comments below, we love hearing from you!

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Adjusting to Celebrating. . .

This past weekend we celebrated both my mother’s 80th birthday and St. Patrick’s Day…let me say I “celebrated” on the outside and cried on the inside. Continue Reading Here

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