Phyllis Tarlow Fine Art - Hudson From Bear Mt

Posts Tagged ‘paralyzed’

My Heart Is Broken. . .

Today is really hard. Today my mother (who is 81) called me at 9:00 am crying because my father (who is 83) has been awake since 4:00 am calling for me. My father is on oxygen 24/7 and while he has not officially been diagnosed with dementia, it is clear he has a degree of dementia. My heart is literally broken 💔

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Why Blog?

Why blog? For me, the simple answer is blogging is my therapy. Blogging gives me something to do. #Blogging helps me express my thoughts and feelings without being judged; without the risk of upsetting anyone or bringing someone down because of how I’m feeling. I can let loose in cyber space and be free.

As a #little_person and unable to reach most everything and being confined to this #wheelchair 👩‍🦽, leaves me alone with my thoughts 💭 more often than not.

Sometimes my thoughts are so random, so angry, so sad, so mad, so discouraged that blogging can sometimes help me sort it out or at the very least express it, get it out of my head. Blogging can sometimes serve as a form of self medication.

After having doctors 👩‍⚕️, lawyers 👩‍⚖️, various manufacturers and other little people all tell me there are no other little people in my circumstances (paralyzed) and therefore there is little to no equipment or ideas on how to continue to live an independent life.

While I never felt #disabled or #handicapped prior to that fateful day in June 2016 when surgery gone wrong left me #paralyzed, I’ve since found myself searching for ideas and/or suggestions on how to do things, how to navigate life from other little people that may also be in a wheelchair. To my surprise, I wasn’t able to find many people in my situation. With that I started blogging about my thoughts, feelings, needs, etc., in the hopes that maybe someday someone will find this blog and maybe be able to relate to my life as it is now and not feel as alone as I so often do now.

As always, I wish you days filled with WONDER – take a minute to WONDER what it is that made you smile today! 😊

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Dealing With #COVID-19 — What’s Next. . .???

What’s next has been weighing heavy on our minds the last few weeks. My honey has been successfully working from home, as a lot of people have, since mid March. Then his company informed everyone that after Labor Day they wanted to bring people back to work two days a week and continue remote three days.

My honey works in NYC, which is still struggling in certain areas/hot spots of #COVID. With me being #paralyzed and restricted to this #wheelchair 🦼, with virtually no #mobility, I myself am at higher risk of COVID. In addition, Continue Reading Here

How To Be Helpful & Involved . . . When You Physically Can’t

I’m going to start by saying “I know I’m not the only person in this situation.” I’m sure everyone & anyone that has physical limitations at some point can relate to not being able to be helpful and/or be physically involved in something. Whether it’s age, illness, temporary injury or, in my case, Continue Reading Here

Sunday Funday

I’m so grateful for yesterday! The sun was shinning, the temperatures were comfortable in the low 70’s, with a cool breeze. The morning started out like most Sunday mornings Continue Reading Here

INTERNET = INDEPENDENCE OR NOT

Can life be more boring?  I didn’t think I could be more bored than I have been over the last years since #paralysis became my new normal but I was wrong. 

On Tuesday, August 4th, my home state of NY, along with many other states along the East Coast, was hit by Tropical Storm Iasis.⛈️  Continue Reading Here

Do I Dare. . .

My mind is racing in a million different directions…..where do I start. As you know by now, I’m a #little_person or #person_of_short_stature (a.k.a. #dwarf). What you need to understand is that back in 1960/1961 very little was known about #dwarfism and as a result I have never had any “specialized” care or “specialized” doctors, etc. Continue Reading Here

Summertime Sadness

Yesterday marked 4 years since that fateful day when for all intensive purposes my good life came to an end.

The odd thing about yesterday was Continue Reading Here

Change ~ Changed ~ Changing

Have you noticed a few less blog posts from me lately? Me too, but I can’t put my finger on why. Maybe there’s just too much going on all around, maybe I’m just not able to focus, maybe I’m just at a loss. Then today, while watching our NY Governor give his daily briefing today the words #change, #changed and #changing struck me and I began thinking about those words. Continue Reading Here

I Hope You Dance. . .

Mother’s Day. . .a special day to show our Mother’s extra thanks, extra appreciation and most importantly extra 💖.

Not being a mother myself, I can only guess what my mother must have thought that Thursday morning back in 1961. I’ve since been told that on that Thursday morning, the doctors said “she has skin like ivory and jet black hair like her Mommy,” BUT, Continue Reading Here

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