Phyllis Tarlow Fine Art - Hudson From Bear Mt

Posts Tagged ‘COVID19’

The Surprise is Gone

2020 will be my 5th year of holidays in this #wheelchair 👩‍🦽 By now you would think I’d be “okay” with celebrating holidays and special events from the luxury of sitting…wrong. With each holiday and/or special event comes, so too does yet another dose of reality, another reminder that I can no longer truly enjoy or participate in the celebrations.

Yes I can SIT and smile at those around me, YES I can laugh and pretend I’m enjoying myself but I cannot cook the #Thanksgiving dinner, Thanksgiving Dinner 2 I cannot set the Thanksgiving table 🍽️, I can not decorate my home for any holiday, and this year, the reminder of what I can not do came in the form of gift wrapping.

This year, due to #COVID19, my honey, like many others, has been working from home since mid March which has been great 😃 until it wasn’t.

Like most, November signals the brain to start preparing for the holidays, which includes Christmas shopping 🛍️. Once again, I sit in front of this keyboard and do my shopping only this year I’m feeling okay because most everyone is shopping online due to COVID. And then it happened, that awful reminder 😞. The gifts I ordered for my honey started to arrive and I realized that this year, with him working from home, I have no aide here to help me as I have the past 4 holidays, I have no way to wrap them for him, the fun and excitement of unwrapping his gifts 🎁 is forever gone 😢.Presents

It is my honey that brings the packages inside. So what am I supposed to do, ask him who it’s from, then if it’s something I ordered for him do I ask him to go in the closet and get the wrapping paper and wrap it. . .NO. Even if I tell him to just hand me all the packages, I still cannot get the wrapping paper from the closet on my own, get the scissors ✂️on my own, get the scotch tape on my own, then wrap the gift, it’s just a mess. Being #paralyzed is bad enough but being a #little person, unable to reach now that I’m stuck in this wheelchair makes life impossible! Now of course being his wonderful self, he insists that the wrapping doesn’t matter, it the thought that went into picking the gift but still my heart is broken yet again 💔

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Do I Dare. . .

My mind is racing in a million different directions…..where do I start. As you know by now, I’m a #little_person or #person_of_short_stature (a.k.a. #dwarf). What you need to understand is that back in 1960/1961 very little was known about #dwarfism and as a result I have never had any “specialized” care or “specialized” doctors, etc. Continue Reading Here

Summertime Sadness

Yesterday marked 4 years since that fateful day when for all intensive purposes my good life came to an end.

The odd thing about yesterday was Continue Reading Here

Change ~ Changed ~ Changing

Have you noticed a few less blog posts from me lately? Me too, but I can’t put my finger on why. Maybe there’s just too much going on all around, maybe I’m just not able to focus, maybe I’m just at a loss. Then today, while watching our NY Governor give his daily briefing today the words #change, #changed and #changing struck me and I began thinking about those words. Continue Reading Here



We are now 2 months or so with the majority of people attempting to adjust to a “new normal” life amidst #COVID19. While I understand that living a “new normal” lifestyle isn’t easy, doesn’t come naturally and surely isn’t fun, I’ve come to understand and realize that life goes on, whether we like it or not, even when this “new normal” is forced upon us. For me, my “new normal” of #living_this_paralyzed_life was forced on me at the hands of surgery gone wrong that fateful day in June 2016, nearly 4 years ago. Continue Reading Here

Uncertain Times

The #COVID19 #virus 🦠 is now affecting all our lives in ways we never would have imagined just 4 months ago. Ironically, #paralysis is now affecting my life in ways I would never have imagined just 4 years ago. Continue Reading Here