Phyllis Tarlow Fine Art - Hudson From Bear Mt

Archive for the ‘Living This Paralyzed Life’ Category

My Heart Is Broken. . .

Today is really hard. Today my mother (who is 81) called me at 9:00 am crying because my father (who is 83) has been awake since 4:00 am calling for me. My father is on oxygen 24/7 and while he has not officially been diagnosed with dementia, it is clear he has a degree of dementia. My heart is literally broken 💔

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Why Blog?

Why blog? For me, the simple answer is blogging is my therapy. Blogging gives me something to do. #Blogging helps me express my thoughts and feelings without being judged; without the risk of upsetting anyone or bringing someone down because of how I’m feeling. I can let loose in cyber space and be free.

As a #little_person and unable to reach most everything and being confined to this #wheelchair 👩‍🦽, leaves me alone with my thoughts 💭 more often than not.

Sometimes my thoughts are so random, so angry, so sad, so mad, so discouraged that blogging can sometimes help me sort it out or at the very least express it, get it out of my head. Blogging can sometimes serve as a form of self medication.

After having doctors 👩‍⚕️, lawyers 👩‍⚖️, various manufacturers and other little people all tell me there are no other little people in my circumstances (paralyzed) and therefore there is little to no equipment or ideas on how to continue to live an independent life.

While I never felt #disabled or #handicapped prior to that fateful day in June 2016 when surgery gone wrong left me #paralyzed, I’ve since found myself searching for ideas and/or suggestions on how to do things, how to navigate life from other little people that may also be in a wheelchair. To my surprise, I wasn’t able to find many people in my situation. With that I started blogging about my thoughts, feelings, needs, etc., in the hopes that maybe someday someone will find this blog and maybe be able to relate to my life as it is now and not feel as alone as I so often do now.

As always, I wish you days filled with WONDER – take a minute to WONDER what it is that made you smile today! 😊

Please feel free to “SHARE” this post with your family/friends by using one of the links below!  And don’t forget to leave your comments below, we love hearing from you!

Dealing With #COVID-19 — What’s Next. . .???

What’s next has been weighing heavy on our minds the last few weeks. My honey has been successfully working from home, as a lot of people have, since mid March. Then his company informed everyone that after Labor Day they wanted to bring people back to work two days a week and continue remote three days.

My honey works in NYC, which is still struggling in certain areas/hot spots of #COVID. With me being #paralyzed and restricted to this #wheelchair 🦼, with virtually no #mobility, I myself am at higher risk of COVID. In addition, Continue Reading Here

How To Be Helpful & Involved . . . When You Physically Can’t

I’m going to start by saying “I know I’m not the only person in this situation.” I’m sure everyone & anyone that has physical limitations at some point can relate to not being able to be helpful and/or be physically involved in something. Whether it’s age, illness, temporary injury or, in my case, Continue Reading Here

Memories…

Okay so I’m pretty sure the majority of you reading this have Facebook right and for those of you that do not, I’m sure you’ll still relate to this post. Speaking of Facebook, hopefully you LIKE US ON FACEBOOK!

For those that have Facebook, you know that Facebook frequently looks back on things you’ve posted/shared and shows it to you again as a memory. That is exactly what happened to me this morning and the reason for this post.

Today Facebook reminded me of my Fall decorations by showing me a picture of how I use to decorate my house, both inside & out, pre-#paralysis.

Memories can make us both smile 😊 with happiness, as well as, become sad 😞 over loss. For me, I was caught somewhere in the middle today when I saw these pictures again.

I use to not only take pride in the appearance of my home but I use to actually enjoy decorating, especially seasonal and holiday decorating! While seeing this pictures again brought back those happy days, which I’m grateful for, unfortunately it also made me sad, sad because it was yet again another slap of reality, reminding me what I can’t do; can’t do from this #wheelchair.

I know I could ask my honey to get out the Fall decorations and he would gladly put them out ‘n about but, for me, the fun of it is gone. I am glad that he knows in his heart that I would if I could and he’ll always have the memories of what I use to do.

As always, I wish you days filled with WONDER – take a minute to WONDER what it is that made you smile 😊 today!

Please feel free to “SHARE” this post with your family/friends by using one of the links below!  And don’t forget to leave your comments below, we love hearing from you!

Sunday Funday

I’m so grateful for yesterday! The sun was shinning, the temperatures were comfortable in the low 70’s, with a cool breeze. The morning started out like most Sunday mornings Continue Reading Here

INTERNET = INDEPENDENCE OR NOT

Can life be more boring?  I didn’t think I could be more bored than I have been over the last years since #paralysis became my new normal but I was wrong. 

On Tuesday, August 4th, my home state of NY, along with many other states along the East Coast, was hit by Tropical Storm Iasis.⛈️  Continue Reading Here

Do I Dare. . .

My mind is racing in a million different directions…..where do I start. As you know by now, I’m a #little_person or #person_of_short_stature (a.k.a. #dwarf). What you need to understand is that back in 1960/1961 very little was known about #dwarfism and as a result I have never had any “specialized” care or “specialized” doctors, etc. Continue Reading Here

The Magic of a Campfire

Ahh, the magic and wonder of a campfire. This past weekend we decided to do a fire 🔥 (yes, it was 90ish degrees but we didn’t care). As we sat relaxing by the water, with our drink in hand 🍷 and music playing, Continue Reading Here

Visitability. . .Do You Know What It Means?

I was reading one of my favorite blogs today, Jenny Smith Rolls On, and was struck by her most recent blog post Continue Reading Here

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