Wonderful Wonders

This past weekend we celebrated both my mother’s 80th birthday and St. Patrick’s Day…let me say I “celebrated” on the outside and cried on the inside. Continue Reading Here

Sadly #paralysis takes away the spontaneous touch that says you matter or the unexpected hug that says I’m so glad to see you and worse, the needed caress that says I’m sorry. Continue Reading Here

Snow, it’s a fact of life if you live in a northern state in the USA, snow, it’s one of the four seasons, snow, it went from fun, exciting to fear and dreading another snow event. Continue Reading Here

Sad but true, forced to rely on other people to do everything for you, completely strips you of your identity as a person in so many ways. Continue Read Here

I guess I could be positive and say, oh they are just trying to help, but I’m tired of people ALWAYS (at least feels like always) contradicting what I say or negatively commenting on something I ask their help with. Why is it okay to make someone feel like no matter what they say or no matter what they ask for is open to contradiction! Continue Reading Here

Being unable to do things and unable to go places with the “friends” you once had makes it very difficult to be social, hence comes social #isolation. Sadly after a life altering situation many, perhaps even most, people will eventually end up isolated and alone due to no fault of their own. Continue Reading Here

With the new year fast approaching, everyone reflects on the year gone by and dreams of the year ahead. With my #paralysis in 2016, I sunk down into a very bad hole, I couldn’t see any future for 2017. Then as 2017 was coming to its closing, looking forward to 2018 didn’t seem much brighter. Continue Reading

Today I read an interesting blog post titled A Bad Advocate With Good Intentions on the Help Codi Heal blog. As I read this post it occurred to me that almost every blog I have read by a paralyzed person, woman or man, talks about being an advocate for disabilities and/or a motivational speaker. Up until now I was thinking perhaps many become motivational speakers because it’s one of the few things they can do. I enjoyed Hedi’s post because I loved the honesty. And then it hit me, I think I too may be or could be a bad #advocate with good intentions. Continue Reading

A girl’s gotta do what a girl’s gotta do right, and for me that means SHOPPING!

Seriously though, while I do like shopping, I’ve found that wearing jeans and slacks just aren’t as practical for me, not on a regular basis at least.  #Accessibility is not always about ramps for easy/accessible entry.  For me, dresses & skirts are my new “go to” attire. Read More

All I Want For Christmas Is. . . I don’t know.  Please please please, don’t think I’m sad or angry or depressed because I’m not, it’s just really really hard to come up with something Santa can get for me because there is so very little I can do. Read More Here