Wonderful Wonders

I am not the same person I used to be. I look in the mirror only to see a stranger looking back at me, at the me that used to be.

I don’t know how to enjoy life anymore, I can’t do the things that I used to bring joy to me, I can’t plant in my garden, I can’t meet “friends” for girls night, I can’t go shopping for gifts for anyone (tell me, how do you order an Easter basket fully put together online?), etc., etc., etc. Nothing matters. Continue Reading Here

STRESS, 😬it’s there, we all have it, can’t stop it, can’t change it, but when my honey’s health is now affected because of me, well, tell me, how am I supposed to deal with that?

He loves me I know, he worries about me it’s true, he stresses over us, what can I do? Continue Reading Here

Lately I’ve been finding myself getting more and more frustrated 😠 when I get treated different when my honey and I are out.” I’m finding more and more people talk about me as if I wasn’t there when I’m right there!

Last week we went to the dry cleaners so I could have a few pieces altered and the seamstress looked directly at my honey and asked “can she try this on”? EXCUSE ME. . . do you not see me?????

Does she need this, can she do that, does she what to do this, at the risk of being rude I feel I need to start responding with “HELLO, I’M SITTING RIGHT HERE AND CAN SPEAK FOR MYSELF!”

So what is it that makes people feel I’m not capable of speaking for myself, is it the wheelchair, is it because I’m a person of short stature or is it a combination of the fact that I am a person of short stature who happens to be in a wheelchair? I struggle to answer that because I simply just don’t know.

I had a very successful career for 30 working at the headquarters of a national non-profit organization. Ending my career I was a Director responsible for generating millions of dollars annually which required a great deal of contract negotiating to come to a mutually beneficial agreement. So, if I somehow managed to think for myself and speak to others for 55 years, why now all of a sudden do people think it’s okay to speak as if I’m not “sitting” right in front of them!

As always, I wish you days filled with wonder – take a minute to wonder what it is that made you smile today!

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This past weekend we celebrated both my mother’s 80th birthday and St. Patrick’s Day…let me say I “celebrated” on the outside and cried on the inside. Continue Reading Here

Sadly #paralysis takes away the spontaneous touch that says you matter or the unexpected hug that says I’m so glad to see you and worse, the needed caress that says I’m sorry. Continue Reading Here

Snow, it’s a fact of life if you live in a northern state in the USA, snow, it’s one of the four seasons, snow, it went from fun, exciting to fear and dreading another snow event. Continue Reading Here

Sad but true, forced to rely on other people to do everything for you, completely strips you of your identity as a person in so many ways. Continue Read Here

I guess I could be positive and say, oh they are just trying to help, but I’m tired of people ALWAYS (at least feels like always) contradicting what I say or negatively commenting on something I ask their help with. Why is it okay to make someone feel like no matter what they say or no matter what they ask for is open to contradiction! Continue Reading Here

Being unable to do things and unable to go places with the “friends” you once had makes it very difficult to be social, hence comes social #isolation. Sadly after a life altering situation many, perhaps even most, people will eventually end up isolated and alone due to no fault of their own. Continue Reading Here

With the new year fast approaching, everyone reflects on the year gone by and dreams of the year ahead. With my #paralysis in 2016, I sunk down into a very bad hole, I couldn’t see any future for 2017. Then as 2017 was coming to its closing, looking forward to 2018 didn’t seem much brighter. Continue Reading